Busy May

I started this blog hoping to keep up with how things are going but... FAIL! May has been extremely busy with doctor appointments, therapy, and every day life.

Lets see where to begin... We saw Jeremiah's Neurosurgeon and Neurologist at the beginning of the month and the appointments went great overall. His Neurosurgeon was very impressed that Jeremiah is doing as good as he is. I think he was more impressed that his shunt hasn't malfunctioned because of his extremely high protein levels. But Praise God for NO MALFUNCTIONS! He has definitely heard this Mama's continual prayers!

His Neurologist said that he is a little behind but it's to be expected with all that he has been through. We follow up with both of them in August again and hopefully they will go over all his CTs, MRIs, and Ultrasounds then. We've never had anyone sit down with us and look over them since his very first scan while in the NICU when he was first born and well... he has had SEVERAL since then. I had spoke with the Nurse Practitioner at the appointment and asked how severe his Periventricular Leukomalacia(PVL) was, she couldn't give me an answer and she also wanted to see how Jeremiah's eye doctor appointment went, so she called me today. Needless to say, it was an emotional day for me after that phone call.

She informed me that his PVL was mild (which I am extremely thankful for) but I could have done without her other information. Evidently she had spoke with the Neurologist after our appointment and she seems to think that Jeremiah's ventricles are pretty much going to stay the size they are and the brain isn't going to "fluff" back out because his brain is damaged. BUT only God knows what his brain is going to look like a year from now and I pray that they are WRONG!

We've also seen his Ophthalmologist this month and he said that he is pleased with Jeremiah's progress as well. His eyes aren't turning as much, but that his right eye is definitely weaker, so we are to patch it twice a day for 30 minutes. Today was our first day doing that because he has been fussy and hasn't felt well because we he is currently cutting his 2nd tooth. The first attempt this morning didn't go so good, but this afternoon he did really well and even held his toy with his right hand for a while, which is a big improvement. I'm hoping that the lack of interest in using his right hand also has to do with his right eye being weaker and maybe once it gets stronger he'll do more with his right hand.

So yeah, that's what our month has consisted of. Hopefully I'll post regularly and then my post won't be as long.